Author: Murshida Parveen
It was by seeing his tiny feet’s structure, the paediatrician on duty in NICU informed us that he doubts whether our kid has a genetic disorder named down syndrome. And hence science proved and warned us to get ready for a journey with Down syndrome .
I’ve often been sad and subdued by the sour-toned comments to my kid.
There were moments I couldn’t utter a single word to those people who had hit me and my child with abusive language.
Some boundaries of relationships just restrict us in our soul insisting on our subconscious mind to remain calm.
When my son came into my life, to be frank, I’ve been ignorant of such a group of people who needs special care. I’ve met a lot of people who follow the same conditions, yet I realize now that my gaze over them was a sympathetic one which I hate the most now.
Growing up with my kid wasn’t an easy road. The first three months after confirming with chromosomal karyotyping that he is a down syndrome boy had led me to a depressive state.
As the term, Down Syndrome wasn’t unfamiliar, the first thing that came to my mind was mental retardation. (I regret now, for such thoughts).
Now, at this point, when I look into the eyes of a ten-year-old boy, I am cognizant of the life he has brought.
The life he opened up to me is filled with humanity, compassion & tolerance. My immature naive personality had been lost somewhere when I became his mother. Drastic changes in my character were visible throughout my life ahead. I wonder about the magic of God he spelled on me. Mothering a gifted child is a mission impossible which mommies like me had made possible.
My son taught me anything is possible if you strive for it. Specialists, Professional Therapists had advised us that sometimes your kid may not speak or walk. But we kept embarking on better outcomes. By god’s grace, he walked at the age of one and started articulating at the age of 2 and a half years. Consistent therapies brought an unbelievable transformation in his life.
His therapies or medications hadn’t obstructed my peace of mind. But Society’s stares and my dearest ones who were abusive had ruined my peaceful life. Community needs to educate themselves regarding children and adult with special needs and instead of strange stares they need to be empathetic.
Even in some crucial circumstances in life, my son was my only hope. And I believe he’s our blessed gift from God.
About the Author :
I am Murshida Parveen from Calicut, Kerala. I’m mother to two boys. I have an 11-year-old special need child. I started blogging as an awareness to society to let the world knows how a single stare affects our lives and peace of mind. Most of my writings comprise of challenges and struggles of special need people’s lives. I used to write with the pseudonym Wordwarrior. I’m a blogger who writes in my mother tongue Malayalam and English since 2020.
Dear Murshida, you are doing a great job, society needs to learn and be supportive. This beautiful journey of yours will definitely make them understand what special parenting is. Want to read more about your parenting journey. Keep shining.
God bless your little one , you are a super mom and I am sure one day your awareness drive will surely make the society understand that very right kind of behaviour towards every child. Keep shining.